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On this International Women’s day 2012 we would like to send out special thanks to all the volunteers in Mucovac 2

by Sarah Joseph, posted on: 08 March 2012 at 15.00

The trial is going full steam ahead. As of this week, we are approaching halfway - 13 women have been recruited into the trial and things are going very well. It seems as though the rate of recruitment is accelerating which is terrific news. Without healthy volunteers like you, none of this research would be possible and we appreciate your commitment very much.

It has been almost a year since I have updated my blog and I can’t believe how the time has flown by. A lot has been happening in the world of HIV vaccines. September 2011 saw the annual HIV vaccine conference in Bangkok which is one of the main events in the calendar for those working in the field. The location was particularly relevant because some hotly anticipated results from the RV144 were the highlight of the meeting. I mentioned the RV144 or “Thai trial” in my previous blog. The vaccine did not work well enough to be taken further in its present form but the encouraging results provided new impetus to the field and also, potentially, clues as to how the vaccine might be having its effect. After extensive analysis of the samples carried out in a spirit of unprecedented collaboration, two of the responses made to the vaccine turned out to be important in determining whether a volunteer got infected with HIV (see below for more information). The results are of particular interest to us because we are currently in the final stages of planning two trials which follow a similar vaccination strategy to the one used in RV144. The UKHVC003 trial will start later in 2012 in London and the Tamovac 01 trial is already running in Tanzania and Mozambique. Based on our previous results, we think that some responses that we will see to the vaccines in these trials might be better than those seen in RV144. We will have to wait and see whether the immune responses which develop after vaccination are similar to those that showed a relationship to protection from infection in the Thai trial. We have no way of knowing whether this will be the case until we have finished the trial.

More information on RV144

The samples collected during the trial which were available for analysis were considered to be so precious that a call was put out to scientists for help in the identification of immune responses which might be playing a role in the protection observed. After some preliminary analysis across a consortium led by Bart Haynes, six different immune responses were prioritised and a “case control” approach adopted for the analysis. Briefly, these six responses were measured in samples from vaccine recipients who became infected and compared to the same responses in those who did not. Samples were taken at week 26, two weeks after the final booster immunization. Ten infections occurred among vaccine recipients prior to week 26, so the total number of infected individuals that could be included in the case control study was 41. The total number of uninfected vaccine recipients included in the comparison was 205. More information can be found here: http://app2.capitalreach.com/esp1204/servlet/tc?c=10188&cn=aidsvac&s=20457&dp=player.jsp&e=16010&mediaType=slideVideo

Analysis revealed that two of the immune responses showed a relationship with the risk of getting infected with the virus after vaccination. Individuals whose blood contained a Y-shaped immune molecule called an immunoglobulin G (IgG) antibody recognising a portion of a HIV's outer envelope called the V2 loop were 43 percent less likely to become infected with HIV than subjects who did not make these antibodies. Those making another kind of antibody, called IgA, recognising different parts of the HIV envelope, fared worse and they were 54 percent more likely to become infected than people who did not make these antibodies, but this immune response did not make people more susceptible to the virus than trial participants who got a placebo. Bart Haynes was keen to stress that the results were not definitive and should be viewed more as useful for generating hypotheses for future study. He commented "What we now have are clues as to why it might have worked. That's something we haven't had over the past 30 years. That's very important for the field."

More information on UKHVC003

UKHVC003 and is funded by the UKHVC (www.ukhvc.org) and the UK Medical Research Council. One main objective of the trial is to assess whether a course of 7 vaccinations (three injections with DNA followed by two with a modified virus called MVA and two more with a synthetic protein derived from the outside of the HIV viral envelope) is safe and well tolerated and good at promoting antibody responses to the vaccine. The other main objective of the study is to see whether we can combine two of the vaccines and thereby shorten the length of the course by 8 weeks without compromising safety and potency. We suspect that shortening the course like this might actually improve the potency of the vaccines. You can find out more about the trial here: http://www.ukhvc.org/2011/07/26/uk-hvc-announces-uk-hvc-spoke-003-trial-of-new-hiv-vaccine-candidates/

We hope to be able to tell you that the trial is open to recruitment later this year. We are in the process of getting all the regulatory approvals that are needed for a study of this kind. As you know from the history of Mucovac 2, this can take longer than anticipated.

Sarah Joseph
on behalf of everyone involved in Help Make History

Comments to: info@helpmakehistory.mrc.ac.uk

 

The best laid plans.....

by: Ken Legg posted on: 16 November 2011 at 12.00

I know I shouldn’t be surprised when a plan doesn’t come off but we never thought it would take nearly 18 months from when we launched the Help Make History website to when the first trial actually started recruiting but I am really pleased to be able to say that the first trial (Mucovac 2) is open! And you should have received an e-mail if you can take part (sorry to all the men but this one is for women only but there should be one in the New Year for you)

It has been a long and at times frustrating journey for all the people involved but with much relief and excitement it is finally all systems go and the first of many HIV vaccine trials planned over the next few years has opened.

Many things can cause a delay before a clinical trial can start. We need to get approval from regulatory authorities, the research ethics committee, the hospital the trial is taking part in and all the departments involved (pharmacy, laboratories, x-ray department etc) and contracts, insurance and suitably trained staff at the sites must all be in place before we start and then there is the vaccine.

A new vaccine takes many years of development and testing before it can be given released for a trial and there are many levels of quality control and stability testing on the vaccines and inspections of production facilities before they can be sent to the hospitals and these will continue after it has been released, and why is?….. because the most important thing in any clinical trial is the safety of the participants.

I have worked on several HIV vaccine trials in the past and I am always amazed at the generosity of the people who come forward to take part. They are aware of how important the need is to find an effective vaccine and are willing to actually do something to help find it and willingly give us their time (and blood) to try and move one step closer to finding it.

I hope that once some of you are on the trial you may be willing to write a blog about your thoughts and we can publish it here to tell everyone else about your experience and what motivated you to come forward, I think it may help others make up their minds about taking part.

As we continue to learn, from previous trials, about what works and what doesn’t we are able to focus on the things that we know work and develop on these.

The next few years are key in our quest for a vaccine as we develop trials that test new vaccines, different products in the strategies that have shown to be most effective and new innovative devises to deliver the vaccines - maybe one of these will prove to be the trial that leads to something that really will ‘Help Make History’.

Comments to: info@helpmakehistory.mrc.ac.uk 


 

Location, Location, Location

by: Ken Legg posted on: 14 June 2011 at 16.00

For the last 12 years the Medical Research Council’s Clinical Trials Unit has been next to Euston Square tube station but in a couple of weeks it’s moving to a new location in Holborn called Aviation House. The new offices are spread across 2 floors of large, open plan spaces - very different to the current small office arrangement over 6 floors in 2 different buildings.

There may be a few technical problems during the move but hopefully it will all go smoothly and the website should be functioning throughout.

Vaccnes have been in the news recently with The Global Alliance on Vaccines and Immunisation asking the world for £2.3billion to give life saving vaccinations to children and save 4 million lives. Bill Gates is heavily involved in this campaign and he and his wife are also very involved in the search for an effective HIV vaccine.

So as you all will have noticed we still haven’t started recruiting to any of our planned trials, we are very close to starting but there have been several unexpected delays with the first trial but I hope that very soon………

I am aware that the first people joined the network almost a year ago and that things in your life may have changed since then but hopefully you are still interested in taking part in a trial or at the least still interested in how the search for the first really effective HIV vaccine goes.

In the years ahead as the search goes on hopefully there will be an HIV vaccine that can help to save even more lives around the world so I ask if you can be patient and don’t give up on the desire to Help Make History.

Comments to: info@helpmakehistory.mrc.ac.uk 


 

Sarah Joseph

by: Sarah Joseph posted on: 18 April 2011 at 17.00

I joined the MRC at the end of 2008 after going back to college and taking an MSc in epidemiology specifically so that I could work in HIV prevention. Over the course of many of the preceding years, my work in the immunology of infectious disease had provided me with the opportunity to live and work in several different countries in Sub Saharan Africa. 

One of the main motivations for this change in direction was witnessing first hand the devastating impact of the HIV epidemic in communities already struggling against crippling poverty. Young women are disproportionately affected by HIV and as a result, the impact of the epidemic is compounded by the numbers of AIDS orphans and children who are born infected.

Although I am very interested in all aspects of HIV prevention, I focus mainly on vaccine development as this is considered to be the most sustainable way of controlling the epidemic. There has never been a more exciting time to be in the field. After almost 25 years of disappointment, the results of the “Thai”- RV144 trial in 2009 renewed faith in the prospect of an effective vaccine.

The vaccine used in Thailand was only partially effective and was not good enough for licensure, but the results from the trial provided some insights into the kinds of immune responses most likely to contribute towards protection. Partly because of its’ integrated and collaborative nature, the community has been able to respond very quickly to this progress in the field and there are several clinical trials underway which hope to capitalise directly on these very recent developments.

The MRC is part of two vaccine trial networks active in Sub Saharan Africa and these joined forces last year and are now working together on one such trial. Two components of this potential vaccine have already shown great promise in Sweden and Tanzania in trials carried out within the TaMoVac network which brings together scientists from Tanzania, Germany, Mozambique, UK and Sweden. The AfreVac network is made up of scientists from Tanzania, Mozambique, UK, Holland, South Africa and Germany- some of whom are common to both. By bringing the TaMoVac and AfreVacc networks together, we hope to accelerate the development of a novel vaccination strategy which will also be explored in parallel here in London during 2012.

The vaccine regimen is quite complex and involves the injection of three distinct components over the course of about 6 months. It now seems most likely that the vaccines which have been tried previously have not been potent enough and/or have not stimulated the appropriate types of immune responses. The results of the Thai trial suggested that a combination of three such components might be particularly good at generating the particular types of immune responses which are thought to contribute to protection against infection.

In February of this year scientists hailing from Mozambique, Tanzania, UK and South Africa and representing both networks, met in Dar es Salaam for training in a new laboratory technique which will speed up progress even more. Once training is completed, it will be possible to carry out all the most relevant analyses of samples from trial participants locally. The vaccine trial is currently running at two sites in Tanzania and will soon be recruiting in Mozambique too. That the sites in Mbeya, Dar es Salaam and Maputo have established such capacity means that apart from the obvious advantages, all the risks associated with storing and shipping samples are kept to an absolute minimum. In February of this year we found out that we have secured funding from the MRC to carry out a similar trial here in London which is very exciting.

The trial is planned to start in 2012 and will probably recruit at one site in London. We are going to explore ways in which a similar vaccination regimen to the one being tried in Tanzania and Mozambique might be shortened hopefully without jeopardising the potency of the vaccine. The length of the vaccine schedule is seen as crucial to the long term feasibility of any vaccine and every effort is made to keep the duration as short as possible.

One of the most rewarding aspects of my work has always been the opportunity to work closely with scientists from all over the world. Conducting HIV vaccine trials in Africa is not easy and we are very fortunate to be part of these committed networks which are working towards the development of an effective vaccine in the areas most affected by the epidemic.

 

Comments to: info@helpmakehistory.mrc.ac.uk 


 

Three months already!……

by: Ken posted on: 22 October 2010 at 17.00

So it has been exactly three months since we launched the website and you may be wondering how it is all going so I thought I would update you all. As the keeper of the site I look almost every day to see how many people have looked at the site the previous day and it makes interesting reading.

The registration page has been visited 562 times but currently there are only 25 people registered – 75% of which are men. Not a bad return in terms of percentages but we hope to get more in the coming weeks and around World AIDS Day in December.

People from all over the world have visited the site. The majority have been from the UK but we have been visited by a total of 33 different countries from around the world including Malaysia, Ethiopia, Costa Rica, Nepal, Argentina and Latvia. Most people are on the site for about three and a half minutes each time apart from the US were the 21 visitors spent an average of 6 seconds on the site – wow, they must be fast readers.

We have tried advertising in different places from our usual locations, such as on the New Scientist website, in Prospect magazine, on posters on tube stations and in a theatre, some were more successful than others but the knowledge gained will help direct future campaigns.

But what does this all mean in terms of the success of the future trials?  Well we aren’t quite on target to get the 50 people registered in 4 months we originally estimated but hopefully we will be close to it.

We do need to get more people registered on the network – especially women as the first trial will only be open to females.

So spread the word if you can and I am sure that by the end of the year we will have enough women waiting to start when the first trial is ready to go!

Comments to: info@helpmakehistory.mrc.ac.uk


Mitzy Gafos

by: Mitzy posted on: 20 September 2010 at 16.00

I have worked in the field of HIV for 15 years in various guises in the UK as well as internationally. As a social scientist I am particularly interested in behavioural aspects of HIV prevention and management. However, after many years of working in East and Southern Africa, I fully recognise that ‘information’ and ‘behaviour change messages’ are simply not enough. Many women either do not want to use condoms, sometimes as they want to conceive, or are unable to negotiate condom use with their partners. Because of these issues, women desperately need additional HIV prevention options that they can use and that they can choice whether or not to talk to their partners about.

For the last 6 years I worked in a rural part of KwaZulu-Natal – the province most affected by HIV in South Africa. My daily reality was that because I worked with a predominately female team in their 20s 30s and 40s that approximately a third of my colleagues lived with HIV. These were smart and strong women – but introducing and maintaining condom use was often just too challenging. Collectively we worked on a HIV prevention trial called MDP 301. This was the largest HIV-prevention clinical trial ever conducted in Africa and the results were published in the Lancet today (Monday 20th September).

We were only one of six research centres in South Africa, Tanzania, Uganda and Zambia that enrolled over 9000 women into the study and worked closely with the local communities to promote HIV prevention. Disappointingly the trial ruled out a gel containing PRO 2000 as a potential microbicide as although it was safe and proved to be highly acceptable to both women and men, it did not reduce the risk of HIV infection when compared to a placebo gel.

The results of the trial were first announced in December 2009 as we wanted to make sure that the thousands of women who participated in the trial were the first to find out the results as soon as possible. However, today’s publication provides extensive detail about the findings and shows that adherence to the gel was very high and many women, who were unable to use condoms for what ever reason, were willing and able to use a vaginal microbicide.

In July of this year, results of another microbicide trial finally provided the much awaited proof that a vaginal gel can reduce the risk of HIV infection. The CAPRISA (Centre for the AIDS Programme of Research In South Africa) 004 trial demonstrated that when used up to 12 hours before sex and up to 12 hours after sex (called the BAT24 dosing regime) 1% tenofovir gel reduced the risk of HIV infection by 39% and HSV-2 infection by 51%. This result is very exciting and brings a ray of hope for women in need of additional HIV prevention options. However, additional independent data corroborating safety and effectiveness are necessary for regulatory approval and licensure before this HIV anti-retroviral drug could be used in a vaginal gel for HIV prevention.  There are a number of ongoing and planned trials that will aim to corroborate this finding and evaluate if the daily use of tenofovir gel also reduces the risk of infection.

In MDP we want to build on the capacity and expertise developed through the previous trial to swiftly implement the MDP 302 trial. If funded, this trial will use the BAT24 dosing regime but will also evaluate whether a single dose of tenofovir gel used around the time of sex would still be safe and effective against HIV infection. For me, it is critically important that we evaluate this to ensure that we are providing a HIV prevention option that is both convenient and cost-effective for women most in need. If we find that a single dose of gel is as good as dual dosing, then we would be able to put gel in the hands of twice as many women!

Funders have committed millions of pounds to microbicide development so far and it is crucial that this poor economic climate does not prevent us from jumping the final hurdles necessary to make vaginal microbicides available for the millions of women desperately in need of additional HIV prevention options. My last 6 years of work have left me in awe of the dedication and commitment that women in areas of high risk of HIV demonstrate to try to find additional ways to prevent infection – we can’t let them down now – we have to make sure that we complete all the research necessary to support making microbicides a reality!

Comments to: info@helpmakehistory.mrc.ac.uk


 

Team work

by: Sarah posted on: 23 August 2010 at 14.00

You’ll get to know more about me as I develop my blog, what inspires me and why I love, despite its challenges, working in the field of HIV research. As a person, I like to set myself the challenge of doing something different every day that moves towards an end result. Contributing.

The funny thing is that I received a school book prize when I was sixteen called The Trials of Life and now I am working in clinical trials, sort of by chance. 

I can’t stay to blog for too long as my role of Scientific Research Administrator is a busy one, never mind what I do in my free time. But there’s always time for all of us to do more. Please therefore consider signing up to our network.

This week I am helping to promote, in Ken’s absence, HelpMakeHistory around a play called ‘Elegies for Angels, Punks and Raging Queens’ which is taking place at the Shaw Theatre 10-28 Aug 2010 http://www.offwestend.com/index.php/plays/view/4525 do go to watch if you can, I’m sure it will be a very moving experience.

What has struck me this week, is that to tackle the issues that the world faces, everyone is or should be working together, let’s help each other. All the disciplines are coming together in the Shaw Theatre promo activity, from the IT staff at MRC CTU who are helping me extricate the posters from the printer to the taxi driver that will get me to the theatre with the display boards, the director, cast and crew of the play, press, audience…. the list goes on, and of course, my lovely team members who are advising me on my poster design skills.

In short, it’s a team effort that you can be part of, contributing to the making of history. It would be great if you would consider signing up to our network and maybe becoming a trial volunteer one day. If you need more information, please get in touch.

More from me later.

Comments to: info@helpmakehistory.mrc.ac.uk


A week is a long time in research

by: Ken  posted on: 29 July 2010 at 14.00

So after many months of preparation and planning the helpmakehistory website was launched on the 19th of July 2010.

For me it has been a very exciting and challenging project to be a part of and I really do hope we are to build a network of like minded people who want to do something to change how HIV is affecting people around the world.

We have started promoting the site and have an advert in The Ecologist and The New Statesman this month. We are also going to have posters at tube stations and are using social networking (Facebook and twitter) to also try and help attract people to the website.

We picked that date to coincide with the start of the World AIDS conference in Vienna.
The conference was a big success with over 19,000 people attending from 197 countries around the world.

On the HIV prevention front the big news was from the CAPRISA 004 study which was a microbicide study conducted in South Africa where women inserted either a gel containing the antiretroviral drug tenofovir or a placebo gel into their vagina before and after they had sex.

There were 38 HIV infections in young women taking tenofovir and 60 in those on placebo, which means the gel was 39% more effective at preventing infection. This was the first microbicide study to show what is called a statistically significant result. We hope this will lead to more reseach into microbicides and hopefully the MRC CTU will be involved.

To find out more information on the conference and the CAPRISA study go to www.aidsmap.com.

If we are able to get enough people to register on the helpmakehistory website we will be able to recruit to any new microbicide trials as well as all the up and coming vaccine studies. Then when the results of these studies are presented at future conferences it will be because of you and you really will have made a difference and changed the future of HIV prevention.

If you have any comments or suggestions about the website we really would welcome then, is there anything you were hoping to find here we haven't thought of just let us know?

So please spread the word, send the Facebook site to all your friends.

Thank you.

Ken

Comments to: info@helpmakehistory.mrc.ac.uk


Let’s get started…

by: Sheena  posted on: 16 July 2010 at 15.00

Thank-you for dropping in!

I’ll start by telling you about Help Make History which we have been planning since 2009. Our Holy Grail is a vaccine, microbicide or drug to prevent HIV – the search to find one or all of these is the ‘Make History’ part.

There are lots of challenges on the way – generating sufficient funding in the first place, getting product through the manufacturing hoops and completing the clinical trials in a timely manner, just to mention a few. So here’s the ‘Help’ part. We recently completed the HIV vaccine trial known as EV03-ANRS Vacc20.  This was a trial of a novel vaccine for HIV and was carried out in healthy volunteers in several different countries within Europe.  We were really impressed with our French colleagues who had a network of healthy volunteers standing-by when they started recruitment to the trial which made the process highly efficient. We talked to our friends in the London, Oxford and York universities and the International AIDS Vaccine Initiative (IAVI), who are working on prevention – mainly for HIV, but also TB and malaria - and agreed  that it would be great to see if we could assemble a similar network of healthy volunteers here in UK.

We are launching Help Make History now under the HIV prevention umbrella because it coincides with the International AIDS Society 2010 conference in Vienna. At the moment we are particularly focussing on HIV vaccines because we know there are at least 3 clinical trials which will start recruiting in London in the next 12 months.

I’m sure you have heard how successful the treatment for HIV is now, and how far it has come. I’ve been privileged to see that history in the making as I was a junior doctor at the Martha and Luke clinic in West London in October 1986. Those of you around at the time will recall the grim reaper and tombstone ads that were rolled out to every doorstep and featured on TV etc. Well it was grim for people living with HIV in 1986. That was the year we first heard of AZT but success was short-term only. Dual therapy proved a little better, but it was 1996 when triple therapy truly changed the future for HIV positive individuals, and as time goes by the fear of long term toxicity from the combination of drugs continues to diminish. The treatment story shows how success is slow and steady rather than being an “overnight sensation”, and I have no doubt it will be the same story for prevention.

I do hope you will feel persuaded to join forces with us by reading more, and/or registering on the network, but even if you don’t thank-you for getting this far!

Comments to: info@helpmakehistory.mrc.ac.uk


 

Bloggers

Sheena McCormackSheena

Sheena McCormack is the Senior Clinical Scientist responsible for the Help Make History project.

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Ken Legg

Ken Legg is a Clinical Scientist closely involved in the Help Make History project. 

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Sarah Jane Banbury

.Sarah Jane Banbury is a Scientific Research Administrator for the HIV Prevention team, at the MRC Clinical Trials Unit and has been with the Unit for 10 years, firstly as PA to 3 senior project leads including Sheena.

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Mitzy Gafos

Mitzy Gafos started working in the field of HIV in 1996. She worked for the United Kingdom Department of Health for many years in service development, eventually working as the National Primary Care lead for the Sexual Health and Drug Misuse team.

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Sarah JosephSJ

I took a degree in cellular pathology at Bristol University and then went to work with Jonathan Howard in the immunology department at the Babraham Institute in Cambridge.

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Recent Posts

14/06/2011: Ken Legg  (Sarah)
18/04/2011: Sarah Joseph  (Sarah)
20/09/2010: Mitzy Gafos  (Mitzy)
22/10/2010: Three months already!  (Ken)
20/09/2010: Mitzy Gafos  (Mitzy)
23/08/2010: Team work  (Sarah)
29/07/2010: A week is a long...  (Ken)
16/07/2010: Let’s get started… (Sheena)